Why am I writing this?

I have known many, many people who have had their dogs die from cancer. In many cases, the cancer was too far advanced to treat. Of those who did treat, you don't know the details of what they went through. It sounds quite simple when summarized with 'we went though chemo and he lived 2 years'. There is a whole lot more emotion and decisions to be made. Treatment is not always simple.

This blog is my own personal experience. Some days are filled with frustration, others are filled with laughter. If anyone is offended, I can't apologize for my emotions. I typed what I felt at the time. It does not mean I feel the same today. If you want clarification, just ask. No matter my frustrations, I know my vet and oncologist are doing a fantastic job of caring for Arri. He just is not co-operating by being a 'typical' case.

Tuesday, April 10, 2012

April 10, 2012 so far, so good.

From all the information I have been given,  side effects from chemo show between days 2 and 5 following treatment.  So far, Arri is doing great.  He is playful, eating well and most importantly, his rear end is funtioning just fine.  I have to remind myself not to check his leg every day.  His current growths won't show well in a photo so I keep touching them to see if there are more or if they are growing.  Tomorrow Arri starts on antibiotics.  His white cell count trends low normally so the antibiotics are a precaution if the chemo drops the white cell count futher.  Blood tests on Friday will tell us if there have been any changes.

Saturday, April 7, 2012

April 6, 2012 Chemo begins

I got as many cakes done as I could before leaving for our appointment.  Once we are out the door, the rest of the day is shot. 


And so the journey continues.  Nice day for a drive with the exception of a lot of traffic.  Many people heading somewhere for the Easter weekend.  I was once again reminded of how God watches over my travels as I see traffic in the other direction at a complete stop due to an accident.  Fast forward to the trip home; same exact thing.

When we check in, they announce over the intercom that Arri has checked in.  All of Arri’s friends come out to see him.  Kathy, from radiology, brings him a HUGE handful of treats.  I warn her of the dangers and she holds out an open palm of 6 or 7 good size nuggets.  Arri swallows them in one bite – whole.  He has no manners around other people.  I take one treat and instruct Arri to prove to everyone in the room that he can take a treat nicely.  That boy KNOWS not to snatch it out of my hand.  Why we have never been able to transfer that behavior to others, I don’t know.   While we are waiting for the doctor, more people stop in the exam room to say hi to Arri. 

When Dr. Obradovich does make it into the room, she is talking very fast and in circles.  I was having a very hard time following her point.  It felt like she was continuing a conversation she thinks we had, that we never had.  She certainly does not want to give the feeling that there is not hope but really, that is the point.  From this moment forward, it is about disease control and quality of life.  Radiation has a 90% success rate.  Radiation did not work.  So we discuss the options.

For the first time, amputation comes up at as a serious option.  She does not believe the loss of the leg would be too much for Arri to deal with.  His weight is good and his hips are good.  Recovery would be 2 – 3 weeks.  The thing about amputation is it is still not a guarantee.  And once the leg is gone, it can’t be put back.  If the cancer were to move elsewhere, then he still has cancer and now he is missing a leg.  Ok, so that is still a last, last resort and I am not sure I will ever go there.  If Arri were younger, yes, I would try it but why do I need to put him through that.

Option 2: Melanomic chemotherapy.  This is a low dose chemo that is generally given daily in a pill form.  We discussed this back in January.  It is a fairly new treatment.  It had all sorts of handling and storage requirements.  Regular blood tests are necessary and it has a 40% chance of slowing down the cancer.

Option 3:  Chemotherapy.  This is high dose chemo.  It requires in office IV treatment.  We do 5 treatments 3 weeks apart.  Regular blood tests are still needed but I can have them done locally and the data faxed to the oncologist.  There are many drug options so if one does not seem to be working, we can try another.  My biggest concern with chemo is the side effects.  Nausea, vomiting, diarrhea and loss of appetite are possible but common.  They can occur 2 – 5 days after treatment.  It sounds like dogs tolerate chemo better than people do.  Or maybe they just hide it better.

Option 4:  do nothing further.   It is estimated that in 4 – 6 months, the cancer will have grown to the point of inhibiting use of the leg and quite probably become painful.  It also has a higher risk of spreading to the lymph system.  At that point we would be dealing with pain management and waiting for the right time.   The Dr. checked the nodes in his upper thigh and was pleased to note that they are not enlarged at all, something that is common post radiation.

I should say Tim was not with on this visit.  We did talk about what we could, not knowing much going into this appointment.  If you have been following Arri’s journey, you may know what I chose to do.   Say it together:   Dee chose option……3 - chemotherapy.   He will be starting out on the drug Carboplatin. I am hoping that Arri has few to no side effects.  I really don’t want to make him sick in order to make him better.  If he does respond poorly, then we stop treatment.

From this point I have two choices.  They can draw blood and do a chest x-ray now, to verify he is healthy to proceed with treatment.  Then schedule treatment for next week sometime.  Or they can draw blood, do a chest x-ray, verify he is healthy to proceed with treatment and start the treatment immediately. Treatment will take an hour. Decisions, decisions.  It’s 3:00.  I want to get home for the Good Friday service. But I do not want to make an extra 5 hour round trip.  Being late for church wins out over a tank of gas and another day of work lost.  They take Arri into the back and get started.   I go out to the car to make some phone calls.  Gotta call my mom and let her know I will be late for church.

An hour later, Arri comes bounding out off the treatment area.  It might have been nice if his genetic code contained a little less ‘happy ‘ gene and little more ‘cancer fighting’ gene.

The drive home involved a lot of speeding, some dirty looks and a thanks to God that the accident was on the other side of the road.  I dumped Arri off at home, changed clothes and made it to church 5 minutes late.  Just in time to join the choir for the first number.

April 3, 2012

Thank you for all your thoughts and prayers.  It is a comfort to know you are out there.  While no one actually said it, I need to stop thinking so much.  Trust my gut and don’t live in a ‘what if’ world.  It’s funny, because I do not play the ‘what if’ game in any other part of my life.  So the ‘what ifs’ are now out of my system.  Arri is not in any imminent, life threatening condition. At least, we don’t believe he is.   If we stopped all treatment, he would still have months – paws crossed - years left in him.  Stopping the treatment would mean a slow disabling of his leg, maybe not so slow.  The cancer is growing very fast, extremely fast actually, but is localized in the leg.  It is not known to spread to organs or lymph system.   However, if left untreated, the tumor would grow excessively large and could break up over time and spread.   

Of course, surgery generally slows growth for a year or more and when combined with radiation, it should be in complete remission.  Since none of that has been effective, I guess I should not put much hope in the statistics.  He is not in pain and he has no issues with walking, running or jumping.  He eats just fine, with the exception of an addiction to cheese.  Thus the dilemma: to treat or not to treat.  If he acted like an old dog, I would give him a break and enjoy the time.  But he thinks he is only 5 so, I have to fight for this old dog that is so young at heart.  On Friday we will talk to the Doctor.  I may change my mind once we talk but for now, we fight.  And if it does more harm than good, I will work less and we spend some time at the beach this summer.  Maybe we should do that anyway.  I know you love the water sweet boy.

I hope nobody minds if I double the price of my cakes to pay for all of this.  Just kidding…kind of…..

Monday, April 2, 2012

April 2, 2012....biopsy

Frustration runs high. I still haven’t heard biopsy results from Arri’s surgery from two weeks ago. I called first thing and the receptionist tried to forward me to the surgeon. He told her oncology was taking care of that. Guess what? Dr Ottnod was not in the office yet. I have found another growth and the latest 3 have gotten larger. I think my biggest frustration is that I expected radiation to work. I feel very let down. I really don’t know what the next step is. More surgery? More radiation? Leave it alone and let him live his life? Part of me wants to do that. But knowing he has cancer and just letting it grow when he is still so healthy in every other respect prevents me from ignoring it. I am starting to think, in some ways, learning your dog has a terminal illness and losing them quickly can be easier. The person going through it certainly doesn’t think so. I am sure they are wondering if they could have caught it sooner. It is a painful blessing in disguise. That test question is a yes/no/when response. I feel like my test is multiple choice with an essay attached. I am constantly second guessing. If I ignore it, will I feel guilty forever because I didn’t do more? And then there is the flip side. If I do more, do I question whether I should have just let it be? My brain hurts. Through this whole ordeal, I have not shed a tear about this but today I am. I am so conflicted in what is best for him.

Time passes…..

I got a call back from the surgeon.  They had not realized they had not received the biopsy results.  He said the tumor was a high…..(something) return of the cancer.  That’s all he said.  He will have Dr. Ottnod or Dr. Obradovich review the results and call me back.

Time passes…..

Dr. Obradovich called.  Well, no she didn’t.  She had her assistant who can’t answer any questions call.  Arri does have Stage 2 sarcoma. We have an appointment on Friday to discuss Chemo, which is apparently her next recommendation.  If we chose to do it, Arri will start on Friday.  So I called on my friend Google to see if I can learn anything before the appointment.  I learned that Chemo will not cure him.  The best we can hope for is that the cancer goes into remission.  At this point, I am pretty skeptical.  The radiation was supposed to do that and the cancer was back in less than 6 weeks after treatment ended.  So, do we spend a boat load of money on something that may not help?    One thing the websites say, and the Dr. said in January, is that chemo may be for life.  Daily/weekly drug administration, monthly blood draws and possible side effects of vomiting, loss of appetite and the big D.  I hate to experiment on my boy.  Maybe we start chemo and if he has bad side effects, we stop. 

Oh, and turn in is in 6 weeks.  Teva is my cuddler and comic relief.  Poor Oregon has some huge paws to fill.

March 26...the cast comes off

Today I brought Arri into my home vet to have his soft cast removed.  I am glad that they put that on him.  He did not bother his leg at all and never had to wear the cone of shame.  Oregon came with as moral support and get his first taste of the vet's office.  He said it smells like dog and tastes like beefy treats.  he will be happy to go back next week.  I didn't tell him next week, he will get bit by a large (needle) bug.

It took awhile to cut the cast off.  They did a really, really good job of wrapping it up.  Something certainly turned out right.  There is next to zero indication that Arri had surgery.  No scabbing, just the slightest bit of reddness and some dry skin but otherwise clean and healthy.